#ThisISMyChild A child with ASD and ADHD

Image found on Facebook

Image found on Facebook

 

This morning I received an email regarding a new campaign #ThisIsMyChild from MNHQ, I didn’t think much of it to be perfectly honest as the twitter party to highlight it was whilst I was working, so I would read it tonight whilst sat upstairs in a room with a single bed and an 8 yr old still bouncing at midnight.2004_1031tbs0005

ThisISMyChild is a campaign around Children with additional needs, specifically those who have behavioral issues, let me start at the beginning.

I spent 9 months yes a full term baby with no difficulties except my body wasn’t so keen on the additional weight I was carrying and gave me some hip issues, a perfectly happy baby boy arrived and we were elated as were his siblings.

We sat and watched, nurtured this beautiful boy with a few concerns, concerns which grew the older he got, his milestones where not being met, he seemed delayed in everything from holding his head up, to teeth coming through to even talking. For any parent this is worrying, by the time his was 2 1/2yrs old the time we needed to help him grow and teach him the basics of education were starting on a learning curve, a curve which takes us down a different road to many, we needed to learn new methods of trying to get this boy to talk, of course we had done what all parents do when they were children but it didn’t work, he didn’t even attempt to make any sounds, he didn’t sleep, he sat and lined cars up all round the room in order of colour and size and every 6th one was facing a different way, friends were starting to comment, eventually our GP decided enough was enough and we needed to have a specialist see him.

We finally got to see a specialist and where told that no decision would be made until at least the age of 7 but we had to have reports from agencies, some we had never heard of, he needed blood tests more than I have had in my lifetime, he reached his 4th Birthday and we were given the news he was ASD (autistic..High functioning) and was by now monosyllabic which was amazing, still no hugs or I love you mummy/daddy, but single words like bullet points in his mind, he had no empathy for anything, the bad when we cried or the laughs when we joked, its so hard on those around them, his temper grew as he did, his strength to run and open doors that were heavy for us as adults was outstanding but scary, he feared so much even cars driving down the road and he would run, in any direction for the fear consumed him, to us it was silly but to him it was real, we couldn’t allow him to walk in front of us, he couldn’t go to school on his scooter or bike.

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Riding a horse may come naturally to many but this achievement. was after many hours of hard work and commitment from a friend, teaching him how to deal with some of his fears.

He attends a main stream school with assistance, he is behind his peers educational but will full support we are hoping to improve it but it may never happen our son may always be behind, he is now 8 and still has major issues, it’s bad enough he has one label all ready, he loves football but he can’t play for a ‘normal’ team as he wouldn’t be accepted, so he plays for a team of children all with ASD, it’s been the best thing for him, we have tried other activities but they didn’t work out due to inappropriate behavior.

Why am I telling you all this, well just last week we received a letter from his specialist after his 6month review to be told that he now has a 2nd label ADHD, this broke my heart, a lifetime of medication may be the only way forward to help my son in the long term, but through friends and family I realised its only a label, he is my son a son who is slowly understanding what love is and what a hug can mean to someone a son I love with all my heart and will protect as I do my daughter, but what gets me is ignorance, people who live in perfect worlds, who expect everything around them to be perfect and those who are hypocritical towards others.

Katie Hopkins is media whore attention seeker who will say things about others without a care in the world about who she hurts, she doesn’t know me or my son but feels the need to slag him off, a need to offend just for kicks, I didn’t ask for my son to be this way and neither did any other parent, but that doesn’t stop us from loving, he is on the SEN at school Because he needs help to achieve better, to hopefully live a life in the future and contribute to society.

Here are a couple of photos from Katie’s twitter feed showing her ignorance as she didn’t even get the Learning Disability week correct instead calling it Learning difficulties.

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I really do worry how she would act if one of her children, grandchildren or friends relations were diagnosed, would she disown them?

Just in case you don’t quite get the message Katie….. OUR CHILDREN MAYBE DIFFERENT BUT WE LOVE THEM AND THEY LOVE US! proper parents don’t judge our children or others, its called ACCEPTANCE and EDUCATED, 2 qualities your obviously lack

 

Linking with T over at Mummy Barrow for Ranty Friday ( Yes I know its Tuesday)
MummyBarrow

 

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